What would you do if someone told you that all three of your children have a rare and sometimes fatal genetic disorder and that they will be confined to wheelchairs for the rest of their lives? We are the Zubairs and all three of our children have Limb Girdle Muscular Dystrophy. We need your help. Support us in finding the best available treatment and management options for our children. Learn more.
We are grateful to Baylor College of Medicine for providing free genetic screening for all three children to find out an accurate diagnosis. The results came in 2014 and the children have been diagnosed with Limb Girdle Muscular Dystrophy, Type 2D (LGMD2D). We arrived in U.S. in early October of 2015 and participated in a stem cell research study at UCLA. We are currently in Texas for treatment, management and therapy options for our children. Please support us by donating today.
Watch GEO TV Interview
This video though several years old, will give you an idea of the children’s struggles.